
I recently asked Fine Gael’s health spokesperson, Dr James Reilly TD, to put a question down in the Dáil requesting that Crohn’s disease be added to the Long Term Illness Scheme.
Crohn’s disease is chronic inflammatory bowel condition that has no known cure.
Sufferers are typically diagnosed in their 20’s and 30’s and face a lifetime of medication, GP sessions, blood tests, endoscopy and regular consultants’ visits. The medication can cost upwards of €80 per month while the consultants’ visits are not covered by health insurance.
As such, a Crohn’s patient will spend over €1,000 per year managing their condition with only a small potential for state support via tax relief at the standard rate. The treatment helps to keep the condition in remission, but it doesn’t prevent flare-ups that can be debilitating and painful for the patient.
The longterm illness scheme was established in 1971 to assist people with chronic medical conditions including:
- Mental handicap
- Mental illness (for people under 16 only)
- Diabetes insipidus
- Diabetes mellitus
- Haemophilia
- Cerebral palsy
- Phenylketonuria
- Epilepsy
- Cystic fibrosis
- Multiple sclerosis
- Spina bifida
- Muscular dystrophies
- Hydrocephalus
- Parkinsonism
- Acute leukaemia
- Conditions arising from use of Thalidomide
Medications required to treat conditions included in the scheme are provided free of charge to the sufferers.
Unfortunately, the Minister has declined to add Crohn’s to the list. I would be interested to know what the cost of adding it would be as it would make a huge difference to sufferers.
QUESTION NO: 104
DÁIL QUESTION addressed to the Minister for Health and Children (Ms. Harney (Dublin Mid-West))
by Deputy James Reilly
for WRITTEN ANSWER on 24/06/2009
* To ask the Minister for Health and Children his views on including Crohn’s disease under the long term illness scheme; and if she will make a statement on the matter.
- James Reilly
Details Supplied: as it is a lifelong condition as it involves regular medical expenses,visits to gps, blood tests, regular medication, and hospital visits which amounts to considerable expenditure and expense for any patient with his lifelong disease, particularly if the patient is not entitled to a medical card but on relatively very low income
REPLY.
There are currently no plans to extend the list of eligible conditions covered by the Long Term Illness Scheme, which was introduced on a statutory basis in 1971.
Under the Drugs Payment Scheme, which was introduced in 1999, no individual or family unit pays more than €100 per calendar month towards the cost of approved prescribed medicines. The scheme is easy to use and significantly reduces the cost burden for families and individuals incurring ongoing expenditure on medicines.
In addition, people who cannot, without undue hardship, arrange for the provision of medical services for themselves and their dependants may be entitled to a medical card. In the assessment process, the Health Service Executive can take into account medical costs incurred by an individual or a family. Those who are not eligible for a medical card may still be able to avail of a GP visit card, which covers the cost of general practice consultations.
QUESTION NO: 104
DÁIL QUESTION addressed to the Minister for Health and Children (Ms. Harney (Dublin Mid-West))
by Deputy James Reilly
for WRITTEN ANSWER on 24/06/2009
* To ask the Minister for Health and Children his views on including Crohn’s disease under the long term illness scheme; and if she will make a statement on the matter.
- James Reilly
Details Supplied: as it is a lifelong condition as it involves regular medical expenses,visits to gps, blood tests, regular medication, and hospital visits which amounts to considerable expenditure and expense for any patient with his lifelong disease, particularly if the patient is not entitled to a medical card but on relatively very low income
REPLY.
There are currently no plans to extend the list of eligible conditions covered by the Long Term Illness Scheme, which was introduced on a statutory basis in 1971.
Under the Drugs Payment Scheme, which was introduced in 1999, no individual or family unit pays more than €100 per calendar month towards the cost of approved prescribed medicines. The scheme is easy to use and significantly reduces the cost burden for families and individuals incurring ongoing expenditure on medicines.
In addition, people who cannot, without undue hardship, arrange for the provision of medical services for themselves and their dependants may be entitled to a medical card. In the assessment process, the Health Service Executive can take into account medical costs incurred by an individual or a family. Those who are not eligible for a medical card may still be able to avail of a GP visit card, which covers the cost of general practice consultations.
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